Edukasi dan Promosi Kesehatan Sindrom Turner

Oleh :

dr.Nailla Fariq Alfiani

Edukasi dan promosi kesehatan pada pasien sindrom Turner ditujukan untuk mencegah komplikasi, terutama kardiovaskular, dan meningkatkan kualitas hidup wanita dengan sindrom Turner. Jika wanita dengan sindrom Turner ingin merencanakan kehamilan, edukasi pasien harus dilakukan tentang in vitro fertilization (IVF) dan risiko kardiovaskular kehamilan.

Edukasi Pasien

Edukasi yang dapat diberikan kepada orangtua dengan anak yang memiliki sindrom Turner diantaranya:

Referensi

1. Shankar Kikkeri N, Nagalli S. Turner Syndrome. [Updated 2021 Aug 11]. In: StatPearls. Treasure Island (FL): StatPearls Publishing; 2021 Jan-. https://www.ncbi.nlm.nih.gov/books/NBK554621/
2. Cui, X., Cui, Y., Shi, L., Luan, J., Zhou, X., & Han, J. A basic understanding of Turner syndrome: Incidence, complications, diagnosis, and treatment. Intractable & rare diseases research, 7(4), 223–228. 2018. https://doi.org/10.5582/irdr.2017.01056
4. Crenshaw ML. Turner Syndrome. National Institute of Child Health and Human Development. 2019. https://rarediseases.org/rare-diseases/turner-syndrome/
5. Rieser P and Davenport M. Turner Syndrome: A Guide For Families. Turner Syndrome Society of the United States. 2017. https://50edf458-92ec-48c8-96eb-0ee4183e817d.filesusr.com/ugd/8fb9de_a621e471cb6542e492a338ee352b65b6.pdf
20. Aditiawati, Tjahjono HB, Pulungan AB, Rini EA, Himawan IW, Marzuki NS, dan Batubara JRL. Panduan Praktik Klinis Ikatan Dokter Anak Indonesia : sindrom Turner. IDAI. https://spesialis1.ika.fk.unair.ac.id/wp-content/uploads/2018/03/PPK-Sindrom-Turner.pdf
24. Gravholt CH, Andersen NH, Gerard S, et al. Clinical practice guidelines for the care of girls and women with Turner syndrome: proceedings from the 2016 Cincinnati International Turner Syndrome Meeting. in European Journal of Endocrinology Volume 177: Issue 3 Page G1–G70. 2017. https://doi.org/10.1530/EJE-17-0430
30. Yang S. Diagnostic and therapeutic considerations in Turner syndrome. Annals of pediatric endocrinology & metabolism, 22(4), 226–230. 2017. https://doi.org/10.6065/apem.2017.22.4.226
35. Princis, M. P., Montalbano, C., Madè, A., & Cena, H. Diet and Lifestyle Role in Homocysteine Metabolism in Turner Syndrome. Medical principles and practice : international journal of the Kuwait University, Health Science Centre, 28(1), 48–55. 2019. https://doi.org/10.1159/000494138
36. Morris SA and Ghanayem NS. Patient With Poor Prognosis, Family Wishes to Pursue All Options, Care Team Cannot Reach Consensus. Ann Thorac Surg 2019. Elsevier Inc. 2019. https://doi.org/10.1016/j.athoracsur.2019.06.004
37. Andre H, Pimentel C, Veau S, et al. Pregnancies and obstetrical prognosis after oocyte donation in Turner Syndrome: A multicentric study. European Journal of Obtetric and Gynecology and Reproductive Biology. Volume 238, P73-77, July 01, 2019. DOI:https://doi.org/10.1016/j.ejogrb.2019.05.012
38. Hong, D., Scaletta Kent, J., & Kesler, S. Cognitive profile of Turner syndrome. Developmental disabilities research reviews, 15(4), 270–278. 2009. https://doi.org/10.1002/ddrr.79
39. Winzenberg, T., & Jones, G. Vitamin D and bone health in childhood and adolescence. Calcified tissue international, 92(2), 140–150. 2013. https://doi.org/10.1007/s00223-012-9615-4
40. Silberbach M, Roos-Hesselink JW, Andersen NH, et al. Cardiovascular Health in Turner Syndrome: A Scientific Statement From the American Heart Association. Genomic and Precision Medicine 2018;11:e000048. https://doi.org/10.1161/HCG.0000000000000048

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